European CLL Association (ECLLA)

Advancing care and research in Chronic Lymphocytic Leukemia

One Europe. Equal care.

Mission

ECLLA unites clinicians, researchers, patient advocates, and industry partners to advance understanding of CLL.

Vision

Every person living with CLL in Europe receives equitable, informed, and optimal care — through collaboration, research, and advocacy.

Values

ECLLA’s actions and partnerships are guided by a shared ethical foundation, centered on respect and integrity in everything we do.

CORE FOCUS AREA

The European CLL Association (ECLLA) aims to enhance research and care for the Chronic Lymphocytic Leukemia (CLL) while fostering collaboration between patient organisations, clinicians and partners. It focuses on the biology of CLL, immune health, infection management, and ensuring equal access to innovative therapies across geographic Europe.

Policy & Access

ECLLA advocates for equitable access to innovative therapies and diagnostics across the EU. It participates in policy discussions to promote harmonised standards of care throughout Europe, ensuring that all patients benefit from advances in CLL treatment.

Partnership building & Collaboration

ECLLA brings together national CLL and blood cancer organisations, patient advocates, clinicians, researchers, and industry partners. By fostering networking and collaboration through forums and partnerships, ECLLA strengthens the CLL community across Europe and promotes the sharing of knowledge and best practice.

Patient Empowerment & Education

ECLLA is dedicated to developing accessible, multilingual educational materials that explain the biology of CLL, its diagnosis, treatment options, and long-term management strategies. This empowers patients and care partners to better understand the disease and its challenges, and to participate actively in treatment decisions.

Immunity & Infection Management

With a focus on the immune dysfunction that is central to CLL, ECLLA prioritises research and education on immunity and infection management. This includes establishing a dedicated working group and developing Europe-wide guidelines on vaccination and infection prevention for people living with CLL.

Research & Data Collaboration

ECLLA aims to establish a comprehensive European CLL Registry to collect anonymised data on treatment outcomes and immune-related complications. This collaborative effort will enhance research capabilities and promote standardised protocols across Europe.

Identified unmet needs

Across Europe, people living with CLL experience significant inequalities. ECLLA’s mission is to reduce these disparities by strengthening European collaboration, evidence-based advocacy, and shared learning to ensure equitable, high-quality CLL care regardless of geography.

ECLLA MEMBERSHIP

ECLLA membership connects and empowers organisations and professionals across Europe who share a commitment to improving equity in CLL care. The network enables collaboration, data sharing, advocacy alignment, and a unified European voice.

Full

Full Members are national patient organisations, CLL associations, or hematology-focused NGOs based in Europe.

Associate

Associate Members include clinical or academic institutions, research groups, registries, and professional networks with an interest in CLL.

Affiliated

Affiliated Members are patient organisations, experts, or networks outside Europe, or groups not exclusively focused on CLL.

Professional

Professional Members is intended for individual clinicians, researchers, and policy professionals.

Join ECLLA and be part of a European community working together to improve care and equity for people living with CLL.

We would like to thank the following ECLLA foundational funders for their support: