Governance Overview

The European CLL Association (ECLLA) brings together clinicians, researchers, patient advocates, and partners to advance understanding of CLL and improve care across Europe. Guided by a shared vision of equitable and informed care for all people living with CLL, ECLLA works through collaboration, research, and advocacy, grounded in respect and integrity.

During the interim period, the European CLL Association (ECLLA) will be led by its founding members, who will provide strategic and operational leadership while the governance structure is being formally established. Acting in line with ECLLA’s vision and values, the founders will guide the organisation’s initial activities and oversee the structured establishment and appointment of the Board of Directors, Medical Advisory Board, Patient Advisory Board, and Working Groups.

Steering Committee

The Steering Committee provides strategic oversight and consists of members who guide the organisation in achieving its strategic goals and objectives, while strengthening its leadership and governance capabilities. ECLLA aims to ensure balanced representation on the Steering Committee from across Northern, Western, Southern, and Eastern Europe.

Medical Advisory Committee

The Medical Advisory Board comprises leading experts in CLL and immunology, providing scientific and medical guidance to enhance the quality of care and support research initiatives within the organisation.

Patient Advisory Committee

The Patient Advisory Board is composed of representatives of ECLLA member organisations. Members provide input and feedback on the needs, experiences, and perspectives of people living with CLL, ensuring that the patient voice is reflected in ECLLA’s activities, priorities, and decision-making processes.

Working Groups

Working Groups are composed of experts appointed on a rotating, task-based basis to advance ECLLA’s core areas of focus. They foster collaboration and innovation across a range of domains, including research, policy, and education.